Do they agree? How parents and professionals perceive the support provided to persons with profound intellectual and multiple disabilities

Background: The aim of this study was to explore agreements in the way parents of a person with profound intellectual and multiple disabilities and professionals perceive the support in terms of its family-centredness in order to gain a better understanding of their collaboration. Method: An adapted version of the Dutch Measure of Processes of Care was completed by 109 parents, and an adapted version of the Dutch Measure of Processes of Care for service providers was completed by 144 professionals. Agreements between parents and professionals were analysed using multilevel analysis. Results: I... Mehr ...

Verfasser: Jansen, Suzanne L. G.
van der Putten, Annette A. J.
Post, Wendy J.
Vlaskamp, Carla
Dokumenttyp: Artikel
Erscheinungsdatum: 2018
Reihe/Periodikum: Jansen , S L G , van der Putten , A A J , Post , W J & Vlaskamp , C 2018 , ' Do they agree? How parents and professionals perceive the support provided to persons with profound intellectual and multiple disabilities ' , Journal of intellectual & developmental disability , vol. 43 , no. 4 , pp. 441-452 . https://doi.org/10.3109/13668250.2017.1287885
Schlagwörter: multiple disabilities / profound intellectual disability / parents / professionals / collaboration / Measure of Processes of Care / family-centredness / FAMILY-CENTERED SERVICES / MPOC-SP / CHILDREN / CARE / PERCEPTIONS / VALIDATION / NETHERLANDS / DELIVERY / MOTHERS / ADULTS
Sprache: Englisch
Permalink: https://search.fid-benelux.de/Record/base-29608077
Datenquelle: BASE; Originalkatalog
Powered By: BASE
Link(s) : https://hdl.handle.net/11370/66b3a664-a1d1-4dbd-b23b-8131fa338448

Background: The aim of this study was to explore agreements in the way parents of a person with profound intellectual and multiple disabilities and professionals perceive the support in terms of its family-centredness in order to gain a better understanding of their collaboration. Method: An adapted version of the Dutch Measure of Processes of Care was completed by 109 parents, and an adapted version of the Dutch Measure of Processes of Care for service providers was completed by 144 professionals. Agreements between parents and professionals were analysed using multilevel analysis. Results: In general, the parents and the professionals disagreed on occurrence and importance of both the Enabling and Partnership scale and the Respectful and Supportive Care scale. Conclusion: In order to deliver family-centred support, service providers should be aware that there are disagreements between the parents' perception of what is important in the support provided and the perception of the professional.