Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands

BACKGROUND: The Patient-Reported Outcomes Measurement Information System (PROMIS) Profile-29 questionnaire is widely used worldwide, but it has not yet been validated in the Netherlands, nor in persons with hemophilia. OBJECTIVE: To validate the Dutch-Flemish version of the PROMIS-29 Profile v2.01 in adults with hemophilia. METHODS: Dutch males with hemophilia (all severities) completed questionnaires that contained sociodemographic and clinical characteristics, the PROMIS-29, RAND-36, and the Hemophilia Activities List (HAL). Structural validity of each subscale was assessed with confirmatory... Mehr ...

Verfasser: van Balen, Erna C
Haverman, Lotte
Hassan, Shermarke
Taal, Elisabeth M
Smit, Cees
Driessens, Mariëtte H
Beckers, Erik A M
Coppens, Michiel
Eikenboom, Jeroen
Hooimeijer, Hélène L
Leebeek, Frank W G
van Vulpen, Lize F D
Schols, Saskia E M
Terwee, Caroline B
Rosendaal, Frits R
van der Bom, Johanna G
Gouw, Samantha C
Dokumenttyp: Artikel
Erscheinungsdatum: 2021
Schlagwörter: hemophilia A / hemophilia B / patient reported outcome measures / surveys and questionnaires / validation study / Hematology / Journal Article
Sprache: Englisch
Permalink: https://search.fid-benelux.de/Record/base-29203720
Datenquelle: BASE; Originalkatalog
Powered By: BASE
Link(s) : https://dspace.library.uu.nl/handle/1874/443914