Communication of an Abnormal Metabolic New-Born Screening Result in The Netherlands: The Parental Perspective
In the Netherlands, abnormal New-Born Screening (NBS) results are communicated to parents by the general practitioner (GP). Good communication and consequential trust in professionals is of the utmost importance in the treatment of phenylketonuria (PKU). The aim of this study was to assess parental satisfaction regarding the communication of an abnormal NBS result for PKU in the Netherlands. An email containing the link to a web-based questionnaire was sent by the Dutch PKU Association to their members. Responses to open questions were categorized, data of both open and closed questions were a... Mehr ...
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Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2022 |
Reihe/Periodikum: | Nutrients, Vol 14, Iss 3961, p 3961 (2022) |
Verlag/Hrsg.: |
MDPI AG
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Schlagwörter: | new-born screening / phenylketonuria / communication / parental perspective / general practitioner / Nutrition. Foods and food supply / TX341-641 |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-29172476 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://doi.org/10.3390/nu14193961 |