Despite the low prevalence of each rare disease, the total burden is high. Patients with rare diseases encounter numerous barriers, including delayed diagnosis and limited access to high-quality treatments. In order to tackle these challenges, the European Commission launched the European Reference Networks (ERNs), cross-border networks of healthcare providers and patients representatives. In parallel, the aims and structure of these ERNs were translated at the federal and regional levels, resulting in the creation of the Flemish Network of Rare Diseases. In line with the mission of the ERNs a... Mehr ...
| Verfasser: |
Piette, Y.
Van den Bossche, F.
Aerts, J.
Aerts, N.
Ajeganova, S.
Badot, V.
Berghen, N.
Blockmans, D.
Brusselle, G.
Caeyers, N.
De Decker, M.
De Haes, P.
De Cock, C.
De Keyser, F.
De Langhe, E.
Delcroix, M.
De Nutte, H.
De Pauw, M.
Depicker, A.
De Sutter, A.
De Sutter, J.
Du Four, T.
Frank, C.
Goubau, J.
Guiot, J.
Gutermuth, J.
Heeman, L.
Houssiau, F.
Hennes, I.
Lenaerts, J.
Lintermans, A.
Loeys, B.
Luyten, H.
Maeyaert, B.
Malfait, F.
Moeyersoons, A.
Mostmans, Y.
Nijs, J.
Poppe, B.
Polfliet, K.
Ruttens, D.
Sabato, V.
Schoeters, E.
Slabbynck, H.
Stuer, A.
Tamirou, F.
Thevissen, Kristof
Van Kersschaever, G.
Vanneuville, B.
Van Offel, J.
Vanthuyne, M.
Van Wabeke, J.
Verbist, C.
Vos, I.
Westhovens, R.
Wuyts, W.
Yserbyt, J.
Smith, V. |
| Dokumenttyp: |
Artikel |
| Erscheinungsdatum: |
2024 |
| Reihe/Periodikum: |
Piette , Y , Van den Bossche , F , Aerts , J , Aerts , N , Ajeganova , S , Badot , V , Berghen , N , Blockmans , D , Brusselle , G , Caeyers , N , De Decker , M , De Haes , P , De Cock , C , De Keyser , F , De Langhe , E , Delcroix , M , De Nutte , H , De Pauw , M , Depicker , A , De Sutter , A , De Sutter , J , Du Four , T , Frank , C , Goubau , J , Guiot , J , Gutermuth , J , Heeman , L , Houssiau , F , Hennes , I , Lenaerts , J , Lintermans , A , Loeys , B , Luyten , H , Maeyaert , B , Malfait , F , Moeyersoons , A , Mostmans , Y , Nijs , J , Poppe , B , Polfliet , K , Ruttens , D , Sabato , V , Schoeters , E , Slabbynck , H , Stuer , A , Tamirou , F , Thevissen , K , Van Kersschaever , G , Vanneuville , B , Van Offel , J , Vanthuyne , M , Van Wabeke , J , Verbist , C , Vos , I , Westhovens , R , Wuyts , W , Yserbyt , J & Smith , V 2024 , ' Flemish network on rare connective tissue diseases (CTD) : patient pathways in systemic sclerosis. First steps taken ' , Acta Clinica Belgica: International Journal of Clinical and Laboratory Medicine , vol. 79 , no. 1 , pp. 26-33 . https://doi.org/10.1080/17843286.2023.2280737 |
| Sprache: |
Englisch |
| Permalink: |
https://search.fid-benelux.de/Record/base-29066729 |
| Datenquelle: |
BASE;
Originalkatalog |
| Powered By: |
BASE |
| Link(s) :
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https://pure.eur.nl/en/publications/cb08bc4d-2fca-474b-bc35-fc2ce989eda9 |
