Assessing the reliability and validity of a health-related quality of life instrument, CPADULT, in a Dutch sample of adults with severe disabilities who are non-ambulatory

Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the psychometric characteristics of the CPADULT. Method: Caregivers (n = 47; 77% female, 23% male) of individuals with severe disabilities who are non-ambulatory completed the questionnaire. Internal consistency, test–retest reliability and construct validity wer... Mehr ...

Verfasser: Zalmstra, Trees A.L.
Reinders-Messelink, Heleen A.
Elema, Agnes
van Gils, Willemijn
van der Sluis, Corry K.
van der Putten, Annette A.J.
Dokumenttyp: Artikel
Erscheinungsdatum: 2024
Reihe/Periodikum: Zalmstra , T A L , Reinders-Messelink , H A , Elema , A , van Gils , W , van der Sluis , C K & van der Putten , A A J 2024 , ' Assessing the reliability and validity of a health-related quality of life instrument, CPADULT, in a Dutch sample of adults with severe disabilities who are non-ambulatory ' , Journal of Applied Research in Intellectual Disabilities , vol. 37 , no. 1 , e13160 . https://doi.org/10.1111/jar.13160
Schlagwörter: cerebral palsy / health-related quality of life / severe disabilities / validation
Sprache: Englisch
Permalink: https://search.fid-benelux.de/Record/base-29028886
Datenquelle: BASE; Originalkatalog
Powered By: BASE
Link(s) : https://hdl.handle.net/11370/cd768242-130b-477e-a1f6-bbfca7525ecf

Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the psychometric characteristics of the CPADULT. Method: Caregivers (n = 47; 77% female, 23% male) of individuals with severe disabilities who are non-ambulatory completed the questionnaire. Internal consistency, test–retest reliability and construct validity were analysed. Results: Internal consistency was adequate with Cronbach's alpha values from 0.75 to 0.95. Test–retest reliability was good, as intraclass correlation coefficient of the total score was 0.84 (domains: 0.61–0.89). Construct validity was confirmed with significant differences between subgroups of motor or intellectual abilities. Conclusion: The CPADULT has sufficient reliability and validity as a proxy measure of health-related quality of life for adults with severe disabilities who are non-ambulatory.