Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method: a study protocol
Abstract Background Research on Juvenile Idiopathic Arthritis (JIA) should support patients, caregivers/parents (carers) and clinicians to make important decisions in the consulting room and eventually to improve the lives of patients with JIA. Thus far these end-users of JIA-research have rarely been involved in the prioritisation of future research. Main body Dutch organisations of patients, carers and clinicians will collaboratively develop a research agenda for JIA, following the James Lind Alliance (JLA) methodology. In a ‘Priority Setting Partnership’ (PSP), they will gradually establish... Mehr ...
Verfasser: | |
---|---|
Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2018 |
Reihe/Periodikum: | Pediatric Rheumatology Online Journal, Vol 16, Iss 1, Pp 1-5 (2018) |
Verlag/Hrsg.: |
BMC
|
Schlagwörter: | Juvenile Idiopathic Arthritis (JIA) / Research agenda / James Lind Alliance / Patient involvement / Pediatrics / RJ1-570 / Diseases of the musculoskeletal system / RC925-935 |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-28987115 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://doi.org/10.1186/s12969-018-0276-3 |