Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis
Abstract Background Involving the end-users of scientific research (patients, carers and clinicians) in setting research priorities is important to formulate research questions that truly make a difference and are in tune with the needs of patients. We therefore aimed to generate a national research agenda for Juvenile Idiopathic Arthritis (JIA) together with patients, their caregivers and healthcare professionals through conducting a nationwide survey among these stakeholders. Methods The James Lind Alliance method was used, tailored with additional focus groups held to involve younger patien... Mehr ...
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Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2021 |
Reihe/Periodikum: | Pediatric Rheumatology Online Journal, Vol 19, Iss 1, Pp 1-10 (2021) |
Verlag/Hrsg.: |
BMC
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Schlagwörter: | Juvenile idiopathic arthritis / Research priority setting / James Lind Alliance / Patient involvement / Pediatrics / RJ1-570 / Diseases of the musculoskeletal system / RC925-935 |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-28986853 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://doi.org/10.1186/s12969-021-00540-2 |