Care needs of chronically ill patients with intellectual disabilities in Dutch general practice: patients’ and providers’ perspectives ...

Abstract Background To reduce the impact of chronic diseases (cardiovascular disease, diabetes mellitus type 2, and chronic lung disease (asthma or chronic obstructive pulmonary disease (COPD)), it is imperative that care is of high quality and suitable to patients’ needs. Patients with intellectual disabilities (ID) differ from the average patient population in general practice because of their limitations in adaptive behaviour and intellectual functioning, and concomitant difficulties recognising and reacting to disease symptoms, proactively searching health information, and independently ma... Mehr ...

Verfasser: van den Bemd, Milou
Koks-Leensen, Monique
Cuypers, Maarten
Leusink, Geraline L.
Schalk, Bianca
Bischoff, Erik W. M. A.
Dokumenttyp: Artikel
Erscheinungsdatum: 2024
Verlag/Hrsg.: figshare
Schlagwörter: Medicine / Sociology / FOS: Sociology / Biological Sciences not elsewhere classified / Cancer / Science Policy / Infectious Diseases / FOS: Health sciences
Sprache: unknown
Permalink: https://search.fid-benelux.de/Record/base-28984098
Datenquelle: BASE; Originalkatalog
Powered By: BASE
Link(s) : https://dx.doi.org/10.6084/m9.figshare.c.7287472.v1

Abstract Background To reduce the impact of chronic diseases (cardiovascular disease, diabetes mellitus type 2, and chronic lung disease (asthma or chronic obstructive pulmonary disease (COPD)), it is imperative that care is of high quality and suitable to patients’ needs. Patients with intellectual disabilities (ID) differ from the average patient population in general practice because of their limitations in adaptive behaviour and intellectual functioning, and concomitant difficulties recognising and reacting to disease symptoms, proactively searching health information, and independently managing diseases effectively. Because of these differences, information on their care needs is essential for suitable chronic disease management (CDM). Inadequate recognition of the care needs of this vulnerable population may hamper the harmonisation of evidence-based and person-centred care, compounded by issues such as stigma, misconceptions, and diagnostic overshadowing. This study therefore aimed to explore the ...