Development, testing, and implementation of the Belgian Patient Reported Experience Measure for Pancreatic Cancer Care (PREPARE) project : protocol for a multi-method research project

Abstract: Background: Patients with pancreatic cancer do not feel involved in the development of their treatment and care plans. In Belgium, these plans are decided on during multidisciplinary team meetings. However, limited time is spent on the discussion of the preferences of the patient during these meetings. This research project aims to develop a patient-reported experience measure (PREM) for pancreatic cancer and assess if its use can support collaborative treatment decision-making. Objective: This paper aims to outline the protocol for a multi-method research project to improve person-c... Mehr ...