The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma:translation, cultural adaptation and validation into the Dutch language for the Netherlands
Background: Half of the patients with Neurofibromatosis type 1 (NF1) develop one or more tumours called plexiform neurofibromas, which can have a significant impact on Quality of Life (QoL). The PlexiQoL questionnaire is a disease-specific QoL measure for adults with NF1-associated plexiform neurofibromas. The aim of this study was to adapt and validate a Dutch version of the PlexiQoL for the Netherlands. Methods: The PlexiQoL was translated using the dual-panel methodology, followed by cognitive debriefing interviews to assess face and content validity. The psychometric properties were evalua... Mehr ...
Verfasser: |
Dhaenens, Britt A.E.
van Dijk, Sarah A.
Taal, Walter
Noordhoek, D. Christine
Coffey, Anna
McKenna, Stephen P.
Oostenbrink, Rianne |
Dokumenttyp: |
Artikel |
Erscheinungsdatum: |
2024 |
Reihe/Periodikum: |
Dhaenens , B A E , van Dijk , S A , Taal , W , Noordhoek , D C , Coffey , A , McKenna , S P & Oostenbrink , R 2024 , ' The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma : translation, cultural adaptation and validation into the Dutch language for the Netherlands ' , Journal of Patient-Reported Outcomes , vol. 8 , no. 1 , 33 . https://doi.org/10.1186/s41687-024-00714-y |
Sprache: |
Englisch |
Permalink: |
https://search.fid-benelux.de/Record/base-28634908 |
Datenquelle: |
BASE;
Originalkatalog |
Powered By: |
BASE |
Link(s) :
|
https://pure.eur.nl/en/publications/b89e79a9-1db7-43ef-911b-fcd826c9ea90 |