Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study:Survey Study
Background: Increasingly, social media is being recognized as a potential resource for patient-generated health data, for example, for pharmacovigilance. Although the representativeness of the web-based patient population is often noted as a concern, studies in this field are limited. Objective: This study aimed to investigate the sample bias of patient-centered social media in Dutch patients with gastrointestinal stromal tumor (GIST). Methods: A population-based survey was conducted in the Netherlands among 328 patients with GIST diagnosed 2-13 years ago to investigate their digital communica... Mehr ...
Verfasser: |
Dirkson, Anne
den Hollander, Dide
Verberne, Suzan
Desar, Ingrid
Husson, Olga
van der Graaf, Winette T.A.
Oosten, Astrid
Reyners, Anna K.L.
Steeghs, Neeltje
van Loon, Wouter
van Oortmerssen, Gerard
Gelderblom, Hans
Kraaij, Wessel |
Dokumenttyp: |
Artikel |
Erscheinungsdatum: |
2022 |
Reihe/Periodikum: |
Dirkson , A , den Hollander , D , Verberne , S , Desar , I , Husson , O , van der Graaf , W T A , Oosten , A , Reyners , A K L , Steeghs , N , van Loon , W , van Oortmerssen , G , Gelderblom , H & Kraaij , W 2022 , ' Sample Bias in Web-Based Patient-Generated Health Data of Dutch Patients With Gastrointestinal Stromal Tumor: Survey Study : Survey Study ' , JMIR Formative Research , vol. 6 , no. 12 , e36755 . https://doi.org/10.2196/36755 |
Sprache: |
Englisch |
Permalink: |
https://search.fid-benelux.de/Record/base-28633211 |
Datenquelle: |
BASE;
Originalkatalog |
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Link(s) :
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https://pure.eur.nl/en/publications/500a8371-04d8-4aee-a5a5-caa47b28c34e |