Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis
Background: Involving the end-users of scientific research (patients, carers and clinicians) in setting research priorities is important to formulate research questions that truly make a difference and are in tune with the needs of patients. We therefore aimed to generate a national research agenda for Juvenile Idiopathic Arthritis (JIA) together with patients, their caregivers and healthcare professionals through conducting a nationwide survey among these stakeholders. Methods: The James Lind Alliance method was used, tailored with additional focus groups held to involve younger patients. Fir... Mehr ...
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Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2021 |
Schlagwörter: | James Lind Alliance / Juvenile idiopathic arthritis / Patient involvement / Research priority setting / Pediatrics / Perinatology / and Child Health / Rheumatology / Immunology and Allergy |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-28631053 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://dspace.library.uu.nl/handle/1874/442963 |