Multiple Sclerosis Multidisciplinary Care: A National Survey and Lessons for the Global Community.

Access to, standardization and reimbursement of multidisciplinary care for people with MS (PwMS) is lacking in many countries. Therefore, this study aims to describe the current multidisciplinary care for people with MS (PwMS) in Belgium and identify benefits, needs and future perspectives METHODS: A survey for PwMS questioned various aspects of MS and viewpoints on care. For MS nurses (MSN) and neurologists, employment, education, job-content, care organization and perspectives were inquired. Descriptive and univariate statistics were performed RESULTS: The PwMS survey comprised 916 responden... Mehr ...

Verfasser: Van Hijfte, Liesbeth
Cambron, Melissa
Capron, Brigitte
Dachy, Bernard
Decoo, Danny
Dive, Dominique
Dubois, Bénédicte
Sankari, Souraya El
London, Frederic
Perrotta, Gaetano
Popescu, Veronica
Van Pesch, Vincent
Van Wijmeersch, Bart
Willekens, Barbara
Laureys, Guy
Belgian Study Group for Multiple Sclerosis (BSGMS)
Dokumenttyp: Artikel
Erscheinungsdatum: 2024
Verlag/Hrsg.: Demos Medical Publishing
Schlagwörter: Humans / Female / Male / Middle Aged / Adult / Belgium / Patient Care Team / Multiple Sclerosis / Neurologists / Surveys and Questionnaires / Health Services Accessibility / Disease modifying treatment / Healthcare / Multidisciplinary / Quality of life
Sprache: Englisch
Permalink: https://search.fid-benelux.de/Record/base-28522691
Datenquelle: BASE; Originalkatalog
Powered By: BASE
Link(s) : http://hdl.handle.net/2078.1/287628

Access to, standardization and reimbursement of multidisciplinary care for people with MS (PwMS) is lacking in many countries. Therefore, this study aims to describe the current multidisciplinary care for people with MS (PwMS) in Belgium and identify benefits, needs and future perspectives METHODS: A survey for PwMS questioned various aspects of MS and viewpoints on care. For MS nurses (MSN) and neurologists, employment, education, job-content, care organization and perspectives were inquired. Descriptive and univariate statistics were performed RESULTS: The PwMS survey comprised 916 respondents with a mean age of 46±12.7 years and 75,4 % of the respondents being female. The majority of the participants had relapsing remitting MS (60.8 %) and the mean patient determined disease steps (PDDS) was 2.0 (IQR=3). 65.3 % and 60.4 % of the PwMS reported having access to a multidisciplinary team (MDT) or MSN. Access to an MSN was associated with more frequent disease modifying treatment (p=.015), spasticity (p=.042) and gait treatment (p=.035), but also more physiotherapy (p=.004), driver's license adjustment (p<.001) and a higher employment rate (p=.004). MDT access was associated with more frequent symptomatic bladder treatment (p=.047), higher physiotherapy rate (p<.001), higher work- (p=.002), insurance- (p<.001) and home support measures (p=.019). PwMS without an available MDT more often indicated that MS care needs improvement (p<.001). MSN's (n = 22) were mainly funded through various budgets, including hospital and neurology practice budgets. Finally, 69 % and 75 % neurologists (n = 62) working without an MSN or MDT stated a need of such support and 61 % agreed that MDT's should be organized at hospital-network level CONCLUSION: MDT and MSN availability may enhance medical and socio-economic support for PwMS. Guidelines, alignment and reimbursement are needed.