Transition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study

Abstract Introduction Care for adolescents with haemophilia is transferred from paediatric to adult care around the age of 18 years. Transition programs help to prepare adolescents for this transfer and prevent declining treatment adherence. Evaluating transition readiness may identify areas for improvement. Objective Assess transition readiness among Dutch adolescents and young adults with haemophilia, determine factors associated with transition readiness, and identify areas of improvement in transition programs. Methods All Dutch adolescents and young adults aged 12–25 years with haemophili... Mehr ...