Socioeconomic participation of persons with hemophilia:Results from the sixth hemophilia in the Netherlands study

Background and objectives: Treatment availability and comprehensive care have resulted in improved clinical outcomes for persons with hemophilia. Recent data on socioeconomic participation in the Netherlands are lacking. This study assessed participation in education, in the labor market, and social participation for persons with hemophilia compared with the general male population. Methods: Dutch adults and children (5–75 years) of all hemophilia severities (n = 1009) participated in a questionnaire study that included sociodemographic, occupational, and educational variables. Clinical charac... Mehr ...

Verfasser: van Balen, Erna C.
Hassan, Shermarke
Smit, Cees
Driessens, Mariette H. E.
Beckers, Erik A. M.
Coppens, Michiel
Eikenboom, Jeroen C.
Hooimeijer, H. lène L.
Leebeek, Frank W. G.
Mauser-Bunschoten, Evelien P.
van Vulpen, Lize F. D.
Schols, Saskia E. M.
Rosendaal, Frits R.
van der Bom, Johanna G.
Gouw, Samantha C.
Dokumenttyp: Artikel
Erscheinungsdatum: 2022
Reihe/Periodikum: van Balen , E C , Hassan , S , Smit , C , Driessens , MH E , Beckers , E A M , Coppens , M , Eikenboom , J C , Hooimeijer , H L L , Leebeek , F W G , Mauser-Bunschoten , E P , van Vulpen , L F D , Schols , S E M , Rosendaal , FR , van der Bom , J G & Gouw , S C 2022 , ' Socioeconomic participation of persons with hemophilia : Results from the sixth hemophilia in the Netherlands study ' , Research and practice in thrombosis and haemostasis , vol. 6 , no. 6 , e12741 . https://doi.org/10.1002/rth2.12741
Sprache: Englisch
Permalink: https://search.fid-benelux.de/Record/base-27624300
Datenquelle: BASE; Originalkatalog
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Link(s) : https://research.vumc.nl/en/publications/e2803f2d-e48d-41a9-9659-8fa27f6abc78