Lyme disease in the Dutch policy context: patient consultation in government research agenda setting

Prevalence of Lyme disease (LD) is increasing in the Netherlands. The Dutch Association for Lyme Disease Patients (NVLP) presented a petition to the Dutch Parliament for more LD research and political attention. The Parliament requested advice from the Health Council of the Netherlands, which among others initiated a stakeholder consultation process to identify experiences and research needs. This article presents patients’ consultation results, including their research agenda, and compares it to the advisory report. Patients ascribed high research priority to improved diagnostic tools, new tr... Mehr ...