Validation of the pedHALshort and HALshort in Dutch children and adults with haemophilia

INTRODUCTION: The Haemophilia Activities List (HAL) and paediatric HAL assess self-reported limitations in various daily activities. To reduce patient burden, shorter versions of the pedHAL (22 items) and HAL (18 items) have been developed. AIM: This study aimed to determine the agreement between the pedHAL/HAL full and pedHAL/HAL short and construct validity and internal consistency of the pedHAL / HAL short in persons with haemophilia (PWH). METHODS: A cross-sectional secondary analysis of the Hemophilia in the Netherlands-6 national survey was performed. Adult and paediatric PWH completed t... Mehr ...

Verfasser: Kuijlaars, Isolde A R
van der Net, Janjaap
van Vulpen, Lize F D
Driessens, Mariette H E
Schols, Saskia E M
Tan, Melanie
Gouw, Samantha C
Fischer, Kathelijn
Dokumenttyp: Artikel
Erscheinungsdatum: 2022
Schlagwörter: activities / haemophilia / participation / patient-reported outcome / validity / Genetics(clinical) / Hematology / Journal Article
Sprache: Englisch
Permalink: https://search.fid-benelux.de/Record/base-27457779
Datenquelle: BASE; Originalkatalog
Powered By: BASE
Link(s) : https://dspace.library.uu.nl/handle/1874/446838