Quality of Life of Adopted Chinese Versus Nonadopted Dutch Children with Cleft Lip and/or Palate:A Propensity Score Matched Analysis
Objective: To examine quality of life in internationally adopted children with cleft lip and/or palate (CL/P) versus non-adopted children with CL/P. Design: Cross sectional study. Setting: Multidisciplinary cleft team of a secondary and tertiary hospital in the Netherlands. Methods: Parents of children under the age of 8 treated by the multidisciplinary cleft team of our institutions were asked to fill out a questionnaire containing demographic and clinical data and a validated parent proxy measure of cleft-specific quality of life instrument for children aged 0-8: the CleftChild-8. Adopted ch... Mehr ...
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Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2022 |
Reihe/Periodikum: | van Veen , M M , van den Berge , B A & Mouës-Vink , C M 2022 , ' Quality of Life of Adopted Chinese Versus Nonadopted Dutch Children with Cleft Lip and/or Palate : A Propensity Score Matched Analysis ' , Cleft Palate-Craniofacial Journal , vol. 59 , no. 12 , pp. 1502-1508 . https://doi.org/10.1177/10556656211050795 |
Schlagwörter: | cleft lip / cleft palate / adoption / quality of life / NUTRITIONAL-STATUS / OUTCOMES / CARE / HEALTH / REPAIR |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-27446952 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://hdl.handle.net/11370/c2dbf725-e13d-47f6-b961-f4f283d47c74 |
Objective: To examine quality of life in internationally adopted children with cleft lip and/or palate (CL/P) versus non-adopted children with CL/P. Design: Cross sectional study. Setting: Multidisciplinary cleft team of a secondary and tertiary hospital in the Netherlands. Methods: Parents of children under the age of 8 treated by the multidisciplinary cleft team of our institutions were asked to fill out a questionnaire containing demographic and clinical data and a validated parent proxy measure of cleft-specific quality of life instrument for children aged 0-8: the CleftChild-8. Adopted children were matched to non-adopted children using propensity score matching based on sex, age, type of cleft, if palatal surgery was completed and the level of education of the parent. CleftChild-8 scores were then compared between the matched samples of adopted and non-adopted children with CL/P. Main Outcome Measure(s): Differences in (sub)domain scores of the CleftChild-8. Results: Most median CleftChild-8 scores of the adopted children (n = 29) were slightly lower compared to the 29 matched non-adopted children. A significant difference was seen for the domain score 'satisfaction with (operative) treatment' and 3 of the 13 subdomain scores: 'post-operative results', 'acceptance by siblings' and 'acceptance by family/friends'. Conclusions: By parent report, adopted children with CL/P experienced some areas of lower quality of life when compared to non-adopted children. Members of cleft teams should be aware of the problems associated with adoption and offer additional guidance and counseling to adopted children and their parents.