AcroBel - the Belgian registry on acromegaly : a survey of the 'real-life' outcome in 418 acromegalic subjects

Objectives: To constitute a registry on acromegaly, AcroBel, to evaluate the epidemiology and quality of care of acromegaly in Belgium and Luxembourg. Design: A nationwide survey from June 2003 till September 2004 aiming to collect data from all patients with acromegaly who had visited the participating endocrine clinics after 1 January 2000. Methods: Retrospective data collection coupled to a visit within the survey period, allowing sampling of metabolic parameters and centralised determination of GH and IGF-1. Results: Four hundred and eighteen patients (51% men) were included, of which 96 w... Mehr ...