Barriers in care for children with life-threatening conditions: a qualitative interview study in the Netherlands

Objective To identify barriers, as perceived by parents, to good care for children with life-threatening conditions. Design In a nationwide qualitative study, we held indepth interviews regarding end-of-life care with parents of children (aged 1 to 12 years) who were living with a life-threatening illness or who had died after a medical trajectory (a maximum of 5 years after the death of the child). Sampling was aimed at obtaining maximum variety for a number of factors. The interviews were transcribed and analysed. Setting The Netherlands. Partici