Motives of contributing personal data for health research: (non-)participation in a Dutch biobank
Abstract Background Large-scale, centralized data repositories are playing a critical and unprecedented role in fostering innovative health research, leading to new opportunities as well as dilemmas for the medical sciences. Uncovering the reasons as to why citizens do or do not contribute to such repositories, for example, to population-based biobanks, is therefore crucial. We investigated and compared the views of existing participants and non-participants on contributing to large-scale, centralized health research data repositories with those of ex-participants regarding the decision to end... Mehr ...
Verfasser: | |
---|---|
Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2020 |
Reihe/Periodikum: | BMC Medical Ethics ; volume 21, issue 1 ; ISSN 1472-6939 |
Verlag/Hrsg.: |
Springer Science and Business Media LLC
|
Schlagwörter: | Health Policy / Health (social science) / Issues / ethics and legal aspects |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-27079147 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | http://dx.doi.org/10.1186/s12910-020-00504-3 |