Supplementary Material: Expanded carrier in screening in Flanders (Belgium): an online survey on the perspectives of non-pregnant reproductive-aged women
Abstract Background: Despite a considerable interest in expanded carrier screening (ECS) in the general population, actual uptake of ECS remains low. More insights are needed to better understand the perspectives of reproductive-aged individuals. Materials and methods: Non-pregnant women of reproductive age recruited through public pharmacies throughout Flanders (Belgium) were invited to participate in an online survey. Results: Most participants (63.6%) indicated they would consider ECS for themselves in the future. About 1 in 2 participants showed a positive attitude towards ECS. Conclusion:... Mehr ...
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Dokumenttyp: | Dataset |
Erscheinungsdatum: | 2021 |
Schlagwörter: | Reproduction / Health Counselling / Quantitative Genetics (incl. Disease and Trait Mapping Genetics) / expanded carrier screening / reproductive genetics / attitudes / intention / knowledge / genetic counseling / patient perspectives / preconception care / health policy / survey |
Sprache: | unknown |
Permalink: | https://search.fid-benelux.de/Record/base-26987576 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://doi.org/10.25402/pme.14731896.v1 |
Abstract Background: Despite a considerable interest in expanded carrier screening (ECS) in the general population, actual uptake of ECS remains low. More insights are needed to better understand the perspectives of reproductive-aged individuals. Materials and methods: Non-pregnant women of reproductive age recruited through public pharmacies throughout Flanders (Belgium) were invited to participate in an online survey. Results: Most participants (63.6%) indicated they would consider ECS for themselves in the future. About 1 in 2 participants showed a positive attitude towards ECS. Conclusion: This study reports valuable insights in the perspectives of non-pregnant reproductive aged women in Flanders (Belgium) regarding ECS that can be used in the on-going debate on the responsible implementation of ECS. Text A: Background information Text B: Questionnaire Text C Supplementary data: Table 8: Sociodemographic Characteristics of participants Table 9: Perceived susceptibility Table 10: Acceptability & intention to participate in ECS Table 11: Knowledge about ECS related concepts Table 12: Attitudes towards ECS Table 13: Preferences for the practical organization of a population-based ECS offer