Activity of the alpha-1 antitrypsin deficiency registry in Belgium.
peer reviewed ; A Belgian alpha-1-antitrypsin (AAT) deficiency registry has been established in 2003. Currently 55 patients are included. At the same time, a working group has been set up for publishing national guidelines. In 2014, several Belgian patients founded Alpha-1 Global. We hope that the integrated activities of all the stakeholders involved in AAT deficiency will permit a high quality care for all patients suffering from this disabling disease.
Verfasser: | |
---|---|
Dokumenttyp: | journal article |
Erscheinungsdatum: | 2015 |
Verlag/Hrsg.: |
Taylor & Francis
|
Schlagwörter: | COPD / alpha-1 antitrypsin deficiency / registry / Human health sciences / Cardiovascular & respiratory systems / Sciences de la santé humaine / Systèmes cardiovasculaire & respiratoire |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-26984109 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://orbi.uliege.be/handle/2268/183622 |