A comparative analysis of the requirements for the use of data in biobanks based in Finland, Germany, the Netherlands, Norway and the United Kingdom

To understand the causes of disease and improve diagnosis and treatment regimes, biomedical researchers need access to large numbers of well-characterized data and samples. Over the past decade, biobanks have been established across Europe to collect and manage access to data and samples. The challenge that we face is how to develop the tools and collaborations to enable researchers to access samples and data from a network of biobanks, rather than applying to individual biobanks. One of the perceived stumbling blocks to achieving this is represented by the different legal requirements in each... Mehr ...

Verfasser: Moraia, Lindaa Briceno
Kaye, Jane
Tasse, Anne Marie
Knoppers, Bartha M.
Mitchell, Colin
Soini, Sirpa
Hoppe, Nils
Wallace, Susan E.
Øien, Morten
Dokumenttyp: status-type:publishedVersion
Erscheinungsdatum: 2014
Verlag/Hrsg.: London : SAGE Publications Ltd.
Schlagwörter: Access to data / Biobanks / Biomedical research / Cross-border / Data protection / Article / biobank / Finland / Germany / health practitioner / human / information processing / law / medical information / medical research / Netherlands / Norway / United Kingdom / ddc:340
Sprache: Englisch
Permalink: https://search.fid-benelux.de/Record/base-26830711
Datenquelle: BASE; Originalkatalog
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Link(s) : http://www.repo.uni-hannover.de/handle/123456789/2310