Introduction: Care for adolescents with haemophilia is transferred from paediatric to adult care around the age of 18 years. Transition programs help to prepare adolescents for this transfer and prevent declining treatment adherence. Evaluating transition readiness may identify areas for improvement. Objective: Assess transition readiness among Dutch adolescents and young adults with haemophilia, determine factors associated with transition readiness, and identify areas of improvement in transition programs. Methods: All Dutch adolescents and young adults aged 12–25 years with haemophilia were... Mehr ...
| Verfasser: |
Brands, Martijn R.
Janssen, Ebony A.M.
Cnossen, Marjon H.
Smit, Cees
van Vulpen, Lize F.D.
van der Valk, Paul R.
Eikenboom, Jeroen
Heubel-Moenen, Floor C.J.I.
Hooimeijer, Louise
Ypma, Paula
Nieuwenhuizen, Laurens
Coppens, Michiel
Schols, Saskia E.M.
Laros-van Gorkom, Britta A.P.
Leebeek, Frank W.G.
Driessens, Mariëtte H.E.
Rosendaal, Frits R.
van der Bom, Johanna G.
Fijnvandraat, Karin
Gouw, Samantha C. |
| Dokumenttyp: |
Artikel |
| Erscheinungsdatum: |
2023 |
| Reihe/Periodikum: |
Brands , M R , Janssen , E A M , Cnossen , M H , Smit , C , van Vulpen , L F D , van der Valk , P R , Eikenboom , J , Heubel-Moenen , F C J I , Hooimeijer , L , Ypma , P , Nieuwenhuizen , L , Coppens , M , Schols , S E M , Laros-van Gorkom , B A P , Leebeek , F W G , Driessens , M H E , Rosendaal , F R , van der Bom , J G , Fijnvandraat , K & Gouw , S C 2023 , ' Transition readiness among adolescents and young adults with haemophilia in the Netherlands : Nationwide questionnaire study ' , Haemophilia , vol. 29 , no. 5 , pp. 1191-1201 . https://doi.org/10.1111/hae.14834 |
| Schlagwörter: |
Adolescent
/ Haemophilia A
/ Haemophilia B
/ Self-Management
/ Transition to Adult Care
/ Treatment Adherence and Compliance
/ Young Adult |
| Sprache: |
Englisch |
| Permalink: |
https://search.fid-benelux.de/Record/base-26826464 |
| Datenquelle: |
BASE;
Originalkatalog |
| Powered By: |
BASE |
| Link(s) :
|
https://hdl.handle.net/11370/c653d42b-4642-42b3-b6cf-3f1e4911f955 |
