Demographic and prosocial intrapersonal characteristics of biobank participants and refusers:the findings of a survey in the Netherlands
Research in genetics relies heavily on voluntary contributions of personal data. We aimed to acquire insights into the differences between participants and refusers of participation in a Dutch population-based biobank. Accordingly, we assessed the demographic and prosocial intrapersonal characteristics of respondents who participated (n = 2615) or refused to participate (n = 404) in the Lifelines biobank and databank. Our results indicated that health-related values critically influence participation decisions. The participation threshold for Lifelines was determined by an absence of health-re... Mehr ...
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Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2021 |
Reihe/Periodikum: | Broekstra , R , Aris-Meijer , J , Maeckelberghe , E , Stolk , R & Otten , S 2021 , ' Demographic and prosocial intrapersonal characteristics of biobank participants and refusers : the findings of a survey in the Netherlands ' , EJHG , no. 1 , pp. 11-19 . https://doi.org/10.1038/s41431-020-0701-1 |
Schlagwörter: | ATTITUDES / COMMERCIALIZATION / INTENTION / IMPACT / TRUST |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-26825177 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://hdl.handle.net/11370/499b263b-feca-4d33-8a80-09e5e4d82a16 |