Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands
Background The Patient-Reported Outcomes Measurement Information System (PROMIS) Profile-29 questionnaire is widely used worldwide, but it has not yet been validated in the Netherlands, nor in persons with hemophilia. Objective To validate the Dutch-Flemish version of the PROMIS-29 Profile v2.01 in adults with hemophilia. Methods Dutch males with hemophilia (all severities) completed questionnaires that contained sociodemographic and clinical characteristics, the PROMIS-29, RAND-36, and the Hemophilia Activities List (HAL). Structural validity of each subscale was assessed with confirmatory fa... Mehr ...
| Verfasser: |
van Balen, Erna C.
Haverman, Lotte
Hassan, Shermarke
Taal, Elisabeth M.
Smit, Cees
Driessens, Mariette H.
Beckers, Erik A. M.
Coppens, Michiel
Eikenboom, Jeroen
Hooimeijer, Helene L.
Leebeek, Frank W. G.
van Vulpen, Lize F. D.
Schols, Saskia E. M.
Terwee, Caroline B.
Rosendaal, Frits R.
van Der Bom, Johanna G.
Gouw, Samantha C. |
| Dokumenttyp: |
Artikel |
| Erscheinungsdatum: |
2021 |
| Reihe/Periodikum: |
van Balen , E C , Haverman , L , Hassan , S , Taal , E M , Smit , C , Driessens , M H , Beckers , E A M , Coppens , M , Eikenboom , J , Hooimeijer , H L , Leebeek , F W G , van Vulpen , L F D , Schols , S E M , Terwee , C B , Rosendaal , F R , van Der Bom , J G & Gouw , S C 2021 , ' Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands ' , Journal of Thrombosis and Haemostasis , vol. 19 , no. 11 , pp. 2687-2701 . https://doi.org/10.1111/jth.15454 |
| Schlagwörter: |
hemophilia A
/ hemophilia B
/ patient reported outcome measures
/ surveys and questionnaires
/ validation study
/ QUALITY-OF-LIFE
/ MINIMALLY IMPORTANT DIFFERENCES
/ REPORTED OUTCOME INSTRUMENTS
/ SYSTEM SHORT FORMS
/ FUNCTIONAL IMPAIRMENT
/ US ADULTS
/ PAIN
/ RESPONSIVENESS
/ QUESTIONNAIRE
/ INDIVIDUALS |
| Sprache: |
Englisch |
| Permalink: |
https://search.fid-benelux.de/Record/base-26825106 |
| Datenquelle: |
BASE;
Originalkatalog |
| Powered By: |
BASE |
| Link(s) :
|
https://hdl.handle.net/11370/43bda2ba-644b-477c-9ac3-9a7147de3a4e |
