Background Clinical research on arrhythmogenic cardiomyopathy (ACM) is typically limited by small patient numbers, retrospective study designs, and inconsistent definitions. Aim To create a large national ACM patient cohort with a vast amount of uniformly collected high-quality data that is readily available for future research. Methods This is a multicentre, longitudinal, observational cohort study that includes (1) patients with a definite ACM diagnosis, (2) at-risk relatives of ACM patients, and (3) ACM-associated mutation carriers. At baseline and every follow-up visit, a medical history a... Mehr ...
| Verfasser: |
Bosman, L. P.
Verstraelen, T. E.
van Lint, F. H. M.
Cox, M. G. P. J.
Groeneweg, J. A.
Mast, T. P.
van der Zwaag, P. A.
Volders, P. G. A.
Evertz, R.
Wong, L.
de Groot, N. M. S.
Zeppenfeld, K.
van der Heijden, J. F.
van den Berg, M. P.
Wilde, A. A. M.
Asselbergs, F. W.
Hauer, R. N. W.
te Riele, A. S. J. M.
van Tintelen, J. P.
Baas, A. E.
Barge-Schaapveld, D. Q. C. M.
Boekholdt, S. M.
Cramer, M. J. M.
Dooijes, D.
Jongbloed, J. D. H.
Loh, P.
Planken, R. N.
Prakken, N. H. J.
van der Smagt, J. J.
van der Wal, A. C.
Teske, A. J.
van Veen, T. A. B.
Velthuis, B. K.
Vink, A.
Yap, S. C. |
| Dokumenttyp: |
Artikel |
| Erscheinungsdatum: |
2019 |
| Reihe/Periodikum: |
Bosman , L P , Verstraelen , T E , van Lint , F H M , Cox , M G P J , Groeneweg , J A , Mast , T P , van der Zwaag , P A , Volders , P G A , Evertz , R , Wong , L , de Groot , N M S , Zeppenfeld , K , van der Heijden , J F , van den Berg , M P , Wilde , A A M , Asselbergs , F W , Hauer , R N W , te Riele , A S J M , van Tintelen , J P , Baas , A E , Barge-Schaapveld , D Q C M , Boekholdt , S M , Cramer , M J M , Dooijes , D , Jongbloed , J D H , Loh , P , Planken , R N , Prakken , N H J , van der Smagt , J J , van der Wal , A C , Teske , A J , van Veen , T A B , Velthuis , B K , Vink , A , Yap , S C & The Netherlands Arrhythmogenic Cardiomyopathy Registry 2019 , ' The Netherlands Arrhythmogenic Cardiomyopathy Registry : design and status update ' , Netherlands Heart Journal , vol. 27 , no. 10 , pp. 480-486 . https://doi.org/10.1007/s12471-019-1270-1 |
| Schlagwörter: |
Cardiomyopathies
/ Arrhythmogenic right ventricular dysplasia
/ Research design
/ Registries
/ RIGHT-VENTRICULAR CARDIOMYOPATHY
/ RISK STRATIFICATION
/ NON-COMPACTION
/ DIAGNOSIS |
| Sprache: |
Englisch |
| Permalink: |
https://search.fid-benelux.de/Record/base-26821071 |
| Datenquelle: |
BASE;
Originalkatalog |
| Powered By: |
BASE |
| Link(s) :
|
https://cris.maastrichtuniversity.nl/en/publications/1d844198-7fd4-4455-8cfb-8f55fd8ed307 |
