Dutch patients, caregivers and healthcare professionals generate first nationwide research agenda for juvenile idiopathic arthritis
Abstract Background Involving the end-users of scientific research (patients, carers and clinicians) in setting research priorities is important to formulate research questions that truly make a difference and are in tune with the needs of patients. We therefore aimed to generate a national research agenda for Juvenile Idiopathic Arthritis (JIA) together with patients, their caregivers and healthcare professionals through conducting a nationwide survey among these stakeholders. Methods The James Lind Alliance method was used, tailored with additional focus groups held to involve younger patien... Mehr ...
Verfasser: | |
---|---|
Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2021 |
Reihe/Periodikum: | Pediatric Rheumatology ; volume 19, issue 1 ; ISSN 1546-0096 |
Verlag/Hrsg.: |
Springer Science and Business Media LLC
|
Schlagwörter: | Immunology and Allergy / Rheumatology / Pediatrics / Perinatology and Child Health |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-26689961 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | http://dx.doi.org/10.1186/s12969-021-00540-2 |