Embedding meaningful patient involvement in the process of proposal appraisal at the Dutch Cancer Society

Although academic interest for patient involvement in health research decision-making is growing, in practice it proves challenging to involve patients meaningfully and sustainably. This article aims to unravel systemic factors influencing the embedding of meaningful patients' involvement in proposal appraisal at a private cancer research funding organization. In the case study, the emergent and participatory research approach Reflexive Monitoring in Action was applied. At first, a positive stance of stakeholders towards patient involvement was accompanied by a lack of tools and structures. Th... Mehr ...