Health-related Quality of Life in Epidermolysis Bullosa:Validation of the Dutch QOLEB Questionnaire and Assessment in the Dutch Population
Defining the health-related quality of life (HRQoL) in patients suffering from the heritable blistering disease epidermolysis bullosa (EB) is important in assessing the efficacy of new treatments. The quality of life in EB questionnaire (QOLEB) is an English 17-item EB-specific HRQoL measurement tool. The aim of this study was to develop a validated and reliable QOLEB in Dutch and assess the HRQoL in Dutch EB patients. The QOLEB was translated to Dutch according to protocol. Fifty-five adult patients across 4 EB subtypes participated. The QOLEB had excellant correlation with the Skindex-29 (rh... Mehr ...
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| Dokumenttyp: | Artikel |
| Erscheinungsdatum: | 2014 |
| Reihe/Periodikum: | Yuen , W Y , Frew , J W , Veerman , K , van den Heuvel , E R , Murrell , D F & Jonkman , M F 2014 , ' Health-related Quality of Life in Epidermolysis Bullosa : Validation of the Dutch QOLEB Questionnaire and Assessment in the Dutch Population ' , Acta Derm Venerol , vol. 94 , no. 4 , pp. 442-447 . https://doi.org/10.2340/00015555-1758 |
| Schlagwörter: | epidermolysis bullosa / health-related quality of life / validation / questionnaire / assessment / MEDICAL OUTCOMES / SKIN-DISEASE / SF-36 / DERMATOLOGY / INSTRUMENT / IMPAIRMENT / DERMATITIS / VALIDITY / PATIENT / VERSION |
| Sprache: | Englisch |
| Permalink: | https://search.fid-benelux.de/Record/base-26672125 |
| Datenquelle: | BASE; Originalkatalog |
| Powered By: | BASE |
| Link(s) : | https://hdl.handle.net/11370/ef090419-1712-4ee5-8595-8cbf7437de43 |
