Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method:A study protocol
BACKGROUND: Research on Juvenile Idiopathic Arthritis (JIA) should support patients, caregivers/parents (carers) and clinicians to make important decisions in the consulting room and eventually to improve the lives of patients with JIA. Thus far these end-users of JIA-research have rarely been involved in the prioritisation of future research. MAIN BODY: Dutch organisations of patients, carers and clinicians will collaboratively develop a research agenda for JIA, following the James Lind Alliance (JLA) methodology. In a 'Priority Setting Partnership' (PSP), they will gradually establish a top... Mehr ...
Verfasser: |
Schoemaker, Casper G
Armbrust, Wineke
Swart, Joost F
Vastert, Sebastiaan J
van Loosdregt, Jorg
Verwoerd, Anouk
Whiting, Caroline
Cowan, Katherine
Olsder, Wendy
Versluis, Els
van Vliet, Rens
Fernhout, Marlous J
Bookelman, Sanne L
Cappon, Jeannette
van den Berg, J Merlijn
Schatorjé, Ellen
Muller, Petra C E Hissink
Kamphuis, Sylvia
de Boer, Joke
Lelieveld, Otto T H M
van der Net, Janjaap
Jongsma, Karin R
van Rensen, Annemiek
Dedding, Christine
Wulffraat, Nico M |
Dokumenttyp: |
Artikel |
Erscheinungsdatum: |
2018 |
Reihe/Periodikum: |
Schoemaker , C G , Armbrust , W , Swart , J F , Vastert , S J , van Loosdregt , J , Verwoerd , A , Whiting , C , Cowan , K , Olsder , W , Versluis , E , van Vliet , R , Fernhout , M J , Bookelman , S L , Cappon , J , van den Berg , J M , Schatorjé , E , Muller , P C E H , Kamphuis , S , de Boer , J , Lelieveld , O T H M , van der Net , J , Jongsma , K R , van Rensen , A , Dedding , C & Wulffraat , N M 2018 , ' Dutch juvenile idiopathic arthritis patients, carers and clinicians create a research agenda together following the James Lind Alliance method : A study protocol ' , Pediatric rheumatology , vol. 16 , no. 57 , 57 . https://doi.org/10.1186/s12969-018-0276-3 |
Sprache: |
Englisch |
Permalink: |
https://search.fid-benelux.de/Record/base-26670623 |
Datenquelle: |
BASE;
Originalkatalog |
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BASE |
Link(s) :
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https://hdl.handle.net/11370/3ffac3df-e1bd-4070-acc0-f53b2958dcf1 |