Spice of life. How can we explore and measure the quality of life of children facing life-limiting conditions? Results and challenges of the MOSAIK study in Belgium.

The core goal of paediatric palliative care (PPC) is to improve the quality of life (QoL) of children and their parents but defining and assessing this construct for children with life-limiting conditions is challenging. The objectives of this MOSAIK (Move to open shared advanced interventions for Kids with life-limiting conditions) research consisted in documenting the characteristics of children and their access to paediatric liaison teams (PLTs) in Belgium, adapting an instrument able to evaluate children’s and parents’ quality of life, assessing the psychometric properties of this instrume... Mehr ...