The Netherlands Arrhythmogenic Cardiomyopathy Registry: design and status update
Background Clinical research on arrhythmogenic cardiomyopathy (ACM) is typically limited by small patient numbers, retrospective study designs, and inconsistent definitions. Aim To create a large national ACM patient cohort with a vast amount of uniformly collected high-quality data that is readily available for future research. Methods This is a multicentre, longitudinal, observational cohort study that includes (1) patients with a definite ACM diagnosis, (2) at-risk relatives of ACM patients, and (3) ACM-associated mutation carriers. At baseline and every follow-up visit, a medical history a... Mehr ...
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Dokumenttyp: | Artikel |
Erscheinungsdatum: | 2019 |
Sprache: | Englisch |
Permalink: | https://search.fid-benelux.de/Record/base-26820700 |
Datenquelle: | BASE; Originalkatalog |
Powered By: | BASE |
Link(s) : | https://discovery.ucl.ac.uk/id/eprint/10084457/1/Bosman2019_Article_TheNetherlandsArrhythmogenicCa.pdf |